







Story at: http://www.nytimes.com/2009/11/19/nyregion/19hurt.html?scp=1&sq=elmhurst%20hopsital&st=cse
Lately I have been having what I call Forrest Gump Dreams. Remember that scene in the movie “Forrest Gump” where Forrest is a boy and he is running from bullies but struggling to get away because he is wearing leg braces? Jenny yells “Run Forrest, run!” As he struggles to run the screws begin to come out of the braces and they break free and he sprints away as his pursuers toss their bikes in disgust. Except for the pursuers those are the kind of dreams I am having. For example, I may be walking (limping) down a street and suddenly I start to go faster and then I am running and in the dream I think to myself “wow, so I can run even though I can’t walk! This is great.” In another dream I am on my mountain bike flying down a canyon without any concern for my injured leg and I think “even though I cannot walk I can still go all out on the bike!” Alas, although I am riding my road bike like a man possessed, I cannot hit the trails yet because I cannot stand up on the pedals, and that is an essential pose in mountain biking. At least for a few moments in my dreams I can do those things that in real life are still quite far away.


This week I had a big breakthrough: I managed to walk with just one crutch. This involves using only the right crutch and leaning to the right a bit when taking a step with the left foot. I am not strong enough to sustain this for very long and usually my step is more like a shuffle than a full step-through, but it is a start. I try to walk with one crutch at home and sometimes when out and about, if I have the energy. Although my step is not normal with one crutch, it forces me to put more weight onto my left leg. I have also been going to the pool nearly every day and increasing the amount of walking and swimming I am doing in there. I can feel some strength returning to my leg but I also know I still have a long ways to go before I am walking without any crutches. Still, it is nice to finally be on the road to walking again. I still have problems with extension and my max flexion is only about 115, but hopefully that will improve with time.
Due to my injury I had to cancel all my fieldwork plans for this summer. As you might imagine, fieldwork is the most exciting part of being an archaeologist. Getting outside, getting dirty, looking for the answers to research questions, finding things, and making new friends are just a few of the things that make fieldwork so much fun. Today I had an opportunity to go into the field to observe a magnetometry survey. I was planning to do the same type of work this summer but my leg will not allow it. Even so, it was nice to be in the field, high in the still snow-capped mountains, enveloped in the scent of sagebrush. I sat in the back of the truck and watched from afar, venturing out every now and then to practice putting weight on my leg and to chat with my friends. At one point we tested the magnetic properties of my steel implants by removing all my metal-bearing accessories (crutches, brace, and shoes) and walking over me with the magnetometer. Good news: my implants did not affect the machine’s readings, which means that even if my they are still in place next summer I can do magnetometry without worrying about interference from the screws and plates.
This strange-sounding post title is the name for a range of devices that move your body parts for you, i.e. passively. A continuous passive motion machine (CPM) may bend your arm, flex your back, or in my case bend your leg at the knee. Four months after I brought it home from the hospital I still have my CPM because it still helps me push my flexibility to higher levels. Generally one would not use a CPM so long but my injury is so severe and my scar tissue so aggressive that it has been a huge struggle for me to regain flexibility. The idea is to move the leg even when it is too weak to bear weight or otherwise be exercised. Movement is important to combat scar tissue and loss of range of motion. If you just go home and sit in a brace for 8 weeks then you will gain scar tissue and lose range of motion. The CPM is supposed to help, although some studies say it is not any better than a good physical therapist. I like it because it is done at home, can be used for long periods of time, and psychologically you feel like you are making progress. There are various machine designs but my model, a “Legasus” (ha ha ha) pushes the knee up from beneath. There is a controller with which I can increase the angle of flexion (bending) and extension (straightening), as well as the pace or speed of the up and down motion. In truth the machine does not really push me to zero extension or the highest flexion b/c believe it or not, scar tissue and tight muscles are stronger than the motor drive on the machine! Although it pulls my leg towards straight, my knee stays up in the air at about 15-20 degrees. And at the high end of flexion, when it reaches the limit of my true flexion, the machine slides down the bed away from my thigh. I try various tricks to combat the weakness of the machine, the most important of which is to be sure I am properly situated within the machine with my knee at the axis of flexion, my foot securely in the foot pouch and my hip aligned with the axis there. By slowing increasing the angle of flexion I slowly gain more range of motion. The main drawback of the machine is that when you are very weak you need help getting into the machine, as I did for the first month at home. After that I was strong enough to get my leg into the machine properly. Another drawback is that the machine is lined with faux fleece, which is soft but hot! The foot pocket completely covers your foot in fleece, which is great if it is cold but horribly hot if it is warm. I think they need to design winter and summer versions of the padding! The best thing about my CPM is that it appears to date to the late 1980s with its neon colors on the controller and the body of the machine. I found that in the first few weeks I could barely tolerate more than an hour at a time in the machine. Now I can sit in it for several hours if necessary. The problem is that since it fails to get me to zero extension, if I stay in it too long then my extension suffers. To combat this problem I put in an hour or so, then stop and stretch extension for a while before repeating in the machine. It helps to distract myself by sending emails, watching movies, talking on the phone or reading a book.
Recovering from an injury like mine is difficult and it helps to have a boon companion. I had always been close to our cat but when I came home from the hospital I found that we had much more in common: we both spent most of our time lying around, only getting up occasionally to seek food and drink! For the first month, when I was mostly confined to bed because I was too weak to do much else, our cat laid beside or on me keeping me warm and cheering me up! Even though I am more mobile now she still follows me around to find my lap. Apparently she now regards me as a heated piece of furniture. I don’t mind because she keeps me company and puts a smile on my face even in the darkest moments. For the first few weeks after I returned from the hospital I found it very difficult to relax and sleep because I was very restless. I am not a back sleeper but with my injury I had to sleep on my back. Many nights I would fidget and struggle to get to sleep. Often, the cat came to my rescue by lying on or in between my lower legs. Her weight and warmth somehow calmed my restlessness and enabled me to get to sleep! So if you are injured and stuck in bed, I highly recommend a nice cat to keep you company and help you heal.
A support network is an essential part of a long recovery. In my case support begins with my wife, who has made countless sacrifices to help me in a million ways. In the first 6 weeks especially, when I was tremendously weak, she had to do every little thing for me. Now I can handle many tasks myself but I am still useless at carrying heavy things, working in the yard, and many other things for which she must pull double-duty. The next part of the network is family. Although my family lives far away they sent cards and care packages and called many times. My parents came to visit in week 3 to give my wife some time to focus on her work. My wife’s parents came to visit in week 5 so my wife could go to a conference without leaving me alone. The next aspect of the network is friends and acquaintances. During our first month home from the hospital our friends brought us 1-2 meals each week, which removed a burden from my wife who at least for those nights did not have to make a meal in addition to getting my medicine, etc. Friends also helped with random needs, visited to cheer me up, and took over responsibilities that I could no longer keep. Another group in the network is doctors, nurses, therapists, and other members of the healthcare field. These persons helped me change bandages at home, pushed me to “fire those quads,” cut me when necessary and bent me when I would rather go home. To all the members of my support network, thank you thank you thank you!
Today’s post is both retrospective and current because today I had my third manipulation. A manipulation is recommended when flexibility is limited by scar tissue or other factors. In my case I had my fist manipulation eight weeks after being discharged from the hospital. At the time I could not flex my leg beyond 65-70 degrees because scar tissue had completely enveloped my kneecap, preventing motion. For that manipulation I received an epidural (pain killer in the lower back) and a femoral nerve block. The nerve block is accomplished by giving a shot of painkiller to the femoral nerve, located in the groin area on the same side as the injured leg. The trick is that to find the correct nerve they have to stick a wire in your groin and poke around until the correct part of your leg contracts. The other end of the wire is attached to some kind of battery that sends small electric pulses to the nerve, causing the muscles it serves to contract. During this process I felt like a lab rat as first one, and then another group of muscles contracted involuntarily. Finally, the quadriceps (upper thigh) contracted, indicating that they were poking the femoral nerve. At this point they injected numbing medicine, and for my first manipulation they also inserted a small catheter attached to a tennis-ball-sized rubber ball of medicine that gradually deflated over 24-36 hours, delivering a steady dose of pain killer around the femoral nerve.
In this blog I pick up where I left off on my May 6 post to offer a view of hospital life. Let’s face it, staying in the hospital for 14 days is no picnic. Each day I felt progressively weaker. Aside from loss of appetite and the combined effect of many drugs, my weakness was heightened by multiple surgeries during which I lost quite a bit of blood. One thing that keeps you going in the hospital is the relentless routine. A nurse comes to check your vitals every so often day or night. Nurses come and go all day and night to administer medicine change the IV, etc. The first nurse to visit each morning is the one who draws the daily blood sample. This is done very early so that the surgeons and doctors have a report of your blood statistics before they visit you. The only things that are not on a rigid schedule are visits from various specialists – breathing experts, rehabilitation experts – and the doctors. They come by whenever they get a chance and catch you awake, reasonably alert, and not otherwise indisposed. Sometimes you don’t want to see them but you know that they are there to help so you suck it up and try to do what they ask. During my long stay I was blessed with excellent nurses, doctors, and other specialists. Once or twice I disagreed with a nurse’s decision about a change to my medication but usually s/he would listen to my concerns and maybe even take my requests. Often I was so mixed up in the head from drugs, pain, and fatigue that I felt a lot like this little boy:
Once again I interrupt this retrospective blog with some current news. Today I did my first round of pool rehab. Although I still have some unhealed necrotic flesh, I was able to cover it with a waterproof bandage (which failed, but at least the scab did not float away) and get in the pool. The pool is great for rehab because if the water is at chest height then you are only bearing about a third of your body weight on the leg. This meant that I was able to walk around in the pool without crutches or a brace. It was so liberating and I almost felt like my old self. The pool is also good because I can put a consistent amount of weight on the leg whereas on land with crutches it is difficult to put the same amount of weight on the leg with each step. So I walked around the pool, and then used a float to stay high in the deep end while doing bicycle and cross-country skiing moves. All in all it was great to cross yet another barrier and enter the water for the first time in four months!
After installing the metal implants we waited for the swelling to go down enough to close my lateral incision (beneath the wound vacuum). Alas, after several days of waiting for the swelling to go down the doctors decided that they would have to cover this hole with a skin graft. Taking three thin slices from the surface of my upper thigh, the surgeons used a special machine to construct a roughly 7” X 4.5” almond-shaped skin graft. In the process, they embedded the graft with small holes, like a fishnet, with the idea that skin will grow from the netting to fill in the holes. This structure also makes the graft very stretchy/flexible, enabling it to be stretched across the gap. Since the graft is made from the surface of the skin it creates just a rather sun-burned looking scar at the “harvest site.” For the first month or so after receiving the graft we had to change the dressing once or twice daily. After it had completely scabbed over we changed the dressing less frequently. As it slowly healed the graft shrunk to match the reduced swelling in my leg. At present the graft is completely healed, and only about 7” X 1”, although one bit of necrotic flesh at its edge remains a scab. Necrotic flesh consists of portions of my original skin around the graft that died and turned black during the time between the initial surgery and the time that the skin graft was attached. It is very weird to have dead skin just sitting there on your body, but eventually new skin grows in behind it and takes its place. Now that the skin graft is healed it looks like burn scars I have seen on other people. Over time the colors may gradually turn from reddish-pink to just plain pink, masking the scar to some extent. Although the skin graft was inconvenient in that it required dressing, and kept me from resting my leg on its side, it usually did not hurt. The main problem with the graft is that until it heals completely I cannot go into the pool to do water rehab. Water rehab is nice because you can wear a float around your waist and “walk” without putting much weight on the leg. You can also jog and do other exercises that build muscles due to the resistance of the water. Overall skin grafts are weird things that make me feel like a lizard whose tale magically grows back. The body really is an amazing thing!
After a few days of hanging out with my external fixator and wound vacuum, it was time to work on the bones. In a 5 ½ hour-long surgery, a team of surgeons re-set my bones using two metal plates and 16 screws. Working from a plan they based on the CAT scan and other factors, they managed to get me back together pretty darn well. I imagine that this surgery involved as many clamps, power drills and extension cords as scalpels and scissors. They tell me that the tourniquet was around my upper thigh for several hours, apparently the limit for such things, and I had a dent in my thigh for a few weeks after the surgery. The good news is that I did not tear any ligaments. That said, the piece of bone into which the ACL inserts was apparently smashed such that the ACL had to be sutured back into position. Waking up from this latest surgery I was free of my towel bar, but the wound vac was still with me. Great, so I am fixed, how long until I get out of the hospital? Well, that all depends on how long it takes to get the swelling down enough to close up the gaping hole beneath the wound vac…
After attaching the x-fix, it is time for a Computed Axial Tomography (CAT) scan so that the doctors can get a better idea of just what they will be facing when they go in to fix the bones. A CAT scan yields a 3-D image with false color to make it look as much like the real thing as possible. I am wheeled into a small, dark room with a large machine. In go my legs and after some period of time I am out of there. I do not see the result until after I return home from the hospital. The first time I looked at the CAT scan I broke down in tears. From these images you can see how the top of my lower leg (Tibia) was crushed and shattered. It is scary to see and even today I wonder if I will ever be “normal” again.
I remained in this condition – with wound vac and external fixator – for several days as the doctors waited for the swelling to go down a bit before operating to fix my bones. Needless to say I was very uncomfortable. It is not every day you are graced with a towel bar and vacuum attached to your leg. I was also still in a bit of shock, trying to come to terms with the reality of my injury and the disorientation that comes with being drugged up in a hospital. I had so many IVs and other things hanging off of me that I felt like a fly trapped in a web. If I tried to move in any direction, one of the many tubes would catch on something. I wondered, what next? Can this get any worse?
While we wait for an ambulance to take me to the hospital where I will have surgery, the emergency room staff removes the remainder of my clothing and tries to keep me calm. They are very professional as well as sympathetic, and I can tell they do this a lot. Before removing the ski boot from my broken leg they give me a fresh shot of pain killer so I don’t feel a thing. Still, the thought of them wrenching the stiff boot (it is only 1 season old) from my smashed, dangling leg, gives me the chills. Next I have the option of trying to save my silk thermals or having them cut off. Cut ‘em off I say! Luckily my ski pants are the kind that zips all the way down the sides so they can be removed without destroying them. I wonder, when I bought this style of pants was it a bad omen? As I lay pondering my situation, I develop a terrible pain in my lower back due to lying on the plywood immobilizing board for several hours while I wait for an ambulance. Even in the midst of my plight, I find it funny that the board is hurting worse than my broken leg. Finally the ambulance arrives and two kind gentlemen take me over to the hospital, just a few minutes away. As they wheel me into the hospital I find myself once again in unfamiliar territory. I have taken on the role of THE PATIENT: lying on a gurney, watching the top half of people as I am wheeled down long hallways, wondering if this is real or just a dream, waiting to find out how they will fix the pile of splinters that is my left leg.